Comorbidity in Juvenile Idiopathic Arthritis (JIA)
Concept
Comorbidity can be defined as the presence of two disorders or more occurring at the same time in a single patient. Children with chronic diseases such as JIA can develop complications of the disease itself, a new disease or drug related side effects that have a significant impact on the quality of life. In this project we want to study all significant events occurring before or after the onset of arthritis.
Facts and figures
N Wulffraat
UMC Utrecht
Meet the team
UMC Utrecht
UMC Utrecht
University of Manchester
University of Manchester
University of Manchester
Istituto Giannina Gaslini
IRCCS Istituto G. Gaslini
Charité Berlin
Charité Berlin
Charité Berlin
European Network for Children with Arthritis ENCA
Dutch JIA parent organisation
Objectives
The purpose of this project is to study the presence of comorbidity and symptoms developing under therapy of patients followed in the 3 largest JIA registries in Europe. We assume that comorbidity in a disease such as JIA significantly increases the burden of the disease and thus has major effects on quality of life.
Patient voice
ENCA (European Network for Children with Arthritis) representatives are part of our steering committee. ENCA has parents trained in research, epidemiology and health care amongst its members.
Patient involvement through ENCA can help us analysing the relevance of these complications for the disease burden. They will be actively involved in ranking the importance of the observed comorbidities/ complications and thus in discussing prio- rities for further research.
Abstracts EULAR 2019
OP0058: Development of inflammatory bowel disease during treatment with Etanercept in patients with Juvenile Idiopathic Arthritis