Two patient representatives, one from the patient user council of Diakonhjemmet hospital and one from the National Association of Rheumatology, are involved in all stages of the project. We aim to have regular meetings and communication with the patient representatives to include them in the development of protocol writing, choice of outcome measures, final analyses and presentation and dissemination of results. The Department of Rheumatology in Diakonhjemmet Hospital also has an established rheumatology patient
Council, who will be consulted for relevant user input and presentation of results. We will actively seek to disseminate results from the projects to patients through lay summaries and presentations at patient organizations meetings.