European Network of Pregnancy Registers in Rheumatology (EuNeP)

Objectives of the Project

The goal for all people with inflammatory rheumatic disease is to live a normal life without limitation in daily live. This includes family planning and having children. There is a high unmet need of robust data on the outcomes of pregnancies and on the safety of a substantial number of drugs when used before or during pregnancy.

Currently, three registers in Europe collect prospective data on pregnancies in women with inflammatory rheumatic diseases and one register is about to start.

The primary outcome is the definition of a core data set. Secondary, a first joint data analysis and publication on pregnancy outcomes in e.g. Rheumatoid Arthritis broken down by risk factors and exposures will be performed.

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Facts and Figures

Project Lead
Prof. R. Fischer-Betz
Heinrich-Heine University
FOREUM research grant: € 298.000
2017, Duration 3 years

Meet the Team

Prof. R. Fischer-Betz
Heinrich-Heine University
Dr. A. Strangfeld
German Rheumatism Research Centre
Prof. N. Costedoat-Chalumeau
Université Paris-Descartes
Dr. A. Molto
Groupe Hospitalier Cochin-Saint Vincent de Paul
Dr. M. Wallenius
Trondheim University Hospital
Dr. F. Förger
University Hospital and University of Bern

Patient Voice

Patient participation in all meetings is crucial to explore which questions regarding pregnancies are most relevant for the patients.

Two female patients will be involved in identifying research questions of interest and in defining the core data set, specifically the patient-reported outcomes.

We plan to have at least two meetings a year and several telephone conferences to coordinate the research and to agree on research questions to be answered by parallel or joint data analyses.