IMPROVEMENT – Improving the outcome in myositis spectrum diseases: core set variables harmonization and use from children to adulthoodMyositis transition network

Objectives of the Project

The aim of this project is to harmonize the international registries with MSD: EUROMYOSITIS and AENAS with national registries and hospital records to create a longitudinal data base to improve follow up of patients and to improve treatment and outcome of disease.

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Facts and Figures

Project Lead
Dr. L. Cavagna
IRCCS, Policlinico S.Matteo Foundation

Dr. H. Chinoy
University of Manchester
FOREUM research grant: € 300.000
2017, Duration 3 years

Meet the Team

Dr. H. Chinoy
University of Manchester
Dr. L. Cavagna
IRCCS, Policlinico S.Matteo Foundation
Prof. L. Wedderburn
Arthritis Research, UK Centre for Adolescent Rheumatology, University College London
Prof. M. Gonzalez-Gay
University of Cantabria, Hospital Universitario Marqués de Valdecilla, IDIVAL
Mr. U. Viora
Associazione Nazionale Malati Reumatici ANMAR

Patient Voice

Patients are involved in every phase of the project. Participants are invited through myositis centres and through already existing registries for myositis. Associazione Nazionale Malati Reumatici (ANMAR), Italy is involved as a patient organisation.