Pan-Nordic RA register network

Objectives of the Project

The Nordic premises for register-based collaborative clinical research in the field of chronic inflammatory diseases are particularly promising. With largely similar health care structure, the existence of national registers on medical (cancer, hospitalisations, pregnancies, et cetera) and societal (sick-leave, other cost reimbursements, et cetera) outcomes, the Nordic premises for register-based collaborative clinical research in the field of chronic inflammatory diseases are particularly promising.

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Facts and Figures

Project Lead
Prof. J Askling
ARTIS, Karolinska Institutet
FOREUM research grant: € 297.685
2017 - 2020

Meet the Team

Prof. J Askling
ARTIS, Karolinska Institutet
Prof. M Lund Hetland
DANBIO, Rigshospitalet
Prof. E Lie
NOR-DMARD, Diakonhiemmet University of Oslo
Prof. D Nordström
ROB-FIN, Helsinki University Gentral Hospital
Prof. B Gudbjörnsson
ICEBIO, University of Iceland

Patient Voice

We will establish a Patient Advisory Panel (1-2 members per country) with adequate representation. The Panel will actively participate at the biannual meetings and provide input on the design and performance of each sub-project.

The panel will also serve as liaison between the project and the national patient organizations on general issues such as data protection and perceptions of personal/data integrity, and, depending on focus, to suggest additional patient research partners for the specific projects.

Publications

  • Glintborg B, Lindström U, Aaltonen K, Kristianslund EK, Gudbjornsson B, Chatzidionysiou K, Askling J, Nordström D, Lund Hetland M, Di Giuseppe D, Dreyer L, Jørgensen TS, Kristensen LE, Eklund K, Grondal G, Ernestam S, Joensuu J, Kvien TK, Lie E, Fagerli KM, Geirsson AJ, Jonsson H, Jacobsson LT. First Line Biological Treatment in Ankylosing Spondylitis, Prescription Rates, Baseline Demographics and Disease Activity. a Collaboration between Biological Registers in the Five Nordic Counties [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 10).
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  • Lederballe Grøn K, Arkema EV, Glintborg B, Askling J, Lund Hetland M. Baseline Characteristics and Rates of Hospitalized Infections in Patients with Rheumatoid Arthritis Treated with Non-TNF Inhibitors in Denmark and Sweden [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 10).
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  • Glintborg B, Chatzidionysiou K, Askling J, et al. THU0361 Prescription patterns of biological disease modifying drugs and biosimilars in ankylosing spondylitis – a collaboration between biological registers in the five nordic countries
    Annals of the Rheumatic Diseases 2017;76:341-342
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  • Hetland M, Østergaard M, Askling J, et al. FRI0450 Commonalities and differences in data collection across european spondyloarthritis registries. Annals of the Rheumatic Diseases 2017;76:656-657.
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  • Jørgensen T, Dreyer L, Guðbjörnsson B, et al. FRI0518 Prescription patterns of tumour necrosis factor inhibitor and ustekinumab in psoriatic arthritis: a nordic population-based cohort study. Annals of the Rheumatic Diseases 2017;76:686.
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  • Chatzidionysiou K, Aaltonen K, Nordström D, et al. SAT0669 How do we use biologics in patients with a history of malignancy? an assessment of treatment patterns using scandinavian registers. Annals of the Rheumatic Diseases 2017;76:1027.
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  •  B Glintborg, U Lindström, K Aaltonen, EK Kristianslund, B Gudbjornsson, K Chatzidionysiou, J Askling, D Nordström, ML Hetland, D Di Giuseppe, L Dreyer, LE Kristensen, TS Jørgensen, K Eklund, G Grondal, S Ernestam, J Joensuu, MRK Törmänen, H Skydsgaard, J Hagfors, TK Kvien, E Lie, K Fagerli, AJ Geirsson, H Jonsson, SA Provan, NS Krogh & LTH Jacobsson (2018) Biological treatment in ankylosing spondylitis in the Nordic countries during 2010–2016: a collaboration between five biological registries, Scandinavian Journal of Rheumatology, DOI: 10.1080/03009742.2018.1444199
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  • Chatzidionysiou K, Hetland ML, Frisell T, et al. Opportunities and challenges for real-world studies on chronic inflammatory joint diseases through data enrichment and collaboration between national registers: the Nordic example. RMD Open 2018;4:e000655. doi: 10.1136/rmdopen-2018-000655
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  • Hellgren K, Dreyer L, Arkema EV For the ARTIS Study Group, For the DANBIO Study Group, et al. Cancer risk in patients with spondyloarthritis treated with TNF inhibitors: a collaborative study from the ARTIS and DANBIO registers. Annals of the Rheumatic Diseases 2017;76:105-111.
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